Tuesday, September 10, 2019
Hydrocephalus Awareness Month Story Post
Today is the tenth day of Hydrocephalus Awareness Month and I would like to finally share the one story I've been talking about in previous posts. When I was in grade school, I was with my aide in the art room, working on school work and dropped my pencil. I had bent down to reach for my pencil and when I got it, and sat back up, I had a really bad headache to the point where I was crying because I didn't feel well. I had my mom come and get me. I think as soon as I got home I took a nap to see if my headache would go away, and of course when I woke up it didn't. That day I had also complained my side was hurting and that pain wasn't going away either. I guess we had gone to the hospital to get checked out, and I think the person to see what was going on, maybe asked my mom if I had a shunt, and I think my mom said yes she does, and they said no she doesn't. My shunt had malfunctioned, with the shunt tubing disconnecting from the back of my head all the way into my pelvis. So, on my tenth birthday I had to have my shunt replaced, and before I had gone to have my shunt replaced I got to pick out a blanket and the blanket I picked was a farm animal blanket that I have still to this day. The farm animal blanket was made by a girl and her girl scout troops and that girl's name was Emily Webber. I can sort of remember that after I was out of surgery that I was crying because I was hurting because my head and neck was turned a certain way and it was stiff. There was a time after I had gotten back to my room that somebody came in and had mentioned that the girl who had helped make the blanket I have was there, being treated for leukemia and asked if I would like to meet her, so I think I nodded my head yes or something, but I'm not so sure. I do know that I got to meet her and I think I even thanked her for the blanket she made. Then she left the room. It's hard for me to remember this kind of story because of all the events that occurred but it's still a neat story in a way because of how I got to meet a girl who had made a really sweet fleece blanket. This month matters to me so much and I am doing this so you can learn from it. I may not have an answer to every question that you may have for me, but what I do know is that I'm trying my best to educate all of you about Hydrocephalus. If you haven't already let someone know about Hydrocephalus.
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