Friday, September 27, 2019
Hydrocephalus Awareness Month Story Post
Today is the twenty seventh day of Hydrocephalus Awareness Month and today I would love and like to share a story with you about how I went to rally for medical research. I had gone to a rally for medical research in Washington D.C. for Hydrocephalus and for other diseases that don't have cures. On the first day, they talked about training and what was going to happen for the rally day kickoff on the second day. Later that day, we had a reception in the Kennedy Caucus Room which was very cool. I got to meet with a girl who had the same heart problem as me, and even got to see miss America. On the next day, I got to meet with some congressmen which was really cool because I got to meet with David Joyce, I had met with Brad Couts, Sherrod Brown, and others that couldn't make the meetings. Then on the third day, we didn't have any more meetings so we got to relax, and on the fourth day, we went to dinner, with my aunt, and I got to meet two of her friends and got to see one of her friends that I had already met when I was in Washington D.C. for my 7th and 8th grade trip from a long time ago. Next on the final day, we had left Washington D.C. and drove to come home. Finally, we had made it home and I was glad to be back, so that I could share what it was like to be in D.C. with my family and friends. Also I was glad that I got to do something like that, because before we left to come home that day and arrived home, I met this adorable little boy named GianCarlo and I was very happy to know that my video I made for my senior year of high school has inspired so many kids, teens, and even families. September is Hydrocephalus Awareness Month and it matters. This is why it always matters to me, because I want to feel and I would like to know that I'm helping others and their families learn about Hydrocephalus. I want them to know that they're never alone in this. I want them to know that their doctors, their family, and friends care, and that God cares, because none of them will ever turn you away. God isn't going to turn you away and he certainly won't stop supporting you in anyway possible. I love God and Jesus because Jesus is God's Son, and God sent His Son to die on the cross for our sins, so that we could have everlasting life. So you see, no matter what, God is with us through whatever struggle we go through in life.
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