Thursday, September 12, 2019

Hydrocephalus Awareness Month Story Post

Today is the twelfth day of Hydrocephalus Awareness Month and I would like to just take time to share another story about what I went through growing up. Today, I would like to share a photo and something that tells more about the photo. So first I am going to tell you more about the photo, then share the photo with you. This picture was taken in June of 1996 after I was life flighted to the Cleveland Clinic. I had a seizure that was resulted in brain damage because I had so much swelling in my brain that the wrinkles were completely smooth. The doctor said if I gotten there 15 minutes later I would've had severe brain damage and 30 minutes later would have resulted in me not surviving. After this picture was taken an external shunt was placed to monitor my fluid... and a few days after that I had another surgery to be permanently shunted. I hope you will continue to learn why this Month is so important to me and to others, and why it matters. The people in the photo with me are my three older sisters and older brother. Here is the photo I would like to now share with you, since you know a little bit about it, along with knowing who the people are in the photo with me. So as you can see this month matters so much to me because I want to help not only share what people like me go through, but I also want to help educate people on Hydrocephalus and share my story which is my testimony as well, so you can get to know me a little better. If someone were to look at me and not be able to see any learning disabilities, well just because you can see them, that doesn't mean I don't have them because I do. I will always have Hydrocephalus because there isn't a cure. So many people may not realize that when they're living their life healthy as can be there are so many out there that are going through so much more than me because they have a lot of other problems that are very severe than what I am going through. September is Hydrocephalus Awareness Month and It Matters, tell somebody that you know about it, so they can share and tell others that they know about it too. We need more people all over this world to know about Hydrocephalus, so it's not just something that is left as a unknown and uncommon condition. Let's make it a well known and common condition that people have heard of and can know about. It can be pretty scary if anyone is first diagnosed with Hydrocephalus or anything really because you don't know and are unsure what kind of treatment or help you will need. That being said, Hydrocephalus has only one treatment and that is having a shunt put in. I really do hope that as I been doing these posts that you're learning from them. I can't wait to share something with all of you tomorrow, but until I hope you enjoy reading today's post and will learn a little more of what I had to go through growing up. For me this month is important but the topic I am writing about, is very important.Image may contain: 3 people

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